Involving patients in the conduct of your IPD Meta-analysis projects

Overview

Patients and members of the public are becoming increasingly involved in the design and delivery of health care research. This type of involvement means research is carried out “with” patients and members of the public, rather than them being “participants” in a research project.

INVOLVE, the UK's national body for patient and public involvement, recommends that patients and members of the public should be involved in all stages of a research project. This can help to increase the relevance of research, improve the quality of research, and help to disseminate the findings of the research to a broad audience (including patients and members of the public) in a more meaningful way. The following brief video helps demonstrate how patients and the public can become involved in research.

Although IPD meta-analyses are complex in terms of their methodology, there is still a role for patient and public involvement and engagement across all of its stages (shown in the figure below).

Figure for SEED website

A case example of how this can be achieved can be found here: